I had my first follow-up with the Infectious Disease and Neuro-muscular specialists. The Infectious Disease specialist said everything looked fine, so there was no need to follow-up from here on. I have to watch out for any bad signs on my lungs. The Neuro-muscular specialist was a more interesting visit. First off, my diagnosis has been officially set to Dermatomyositis. There was some improvement in muscle strength, although I'm still very weak by all standards. Lung function hasn't improved though, but it hasn't worsened.
Because of the mild improvement in muscle strength, and the fact that lung function hasn't become worse, they decided to try reducing my dose of Prednisone. So, they have lowered my Prednisone from 80 mg/day to 60 mg/day, and I am to follow a plan that will eventually get it down to an average of 30 mg/day, as long as the Pulmonary specialist says everything is fine with my lungs after my visit with him next Monday. The dose of Imuran was increased to 200 mg/day. I am to have another follow-up in 2 months.
So, those are the current plans. Let us hope everything improves and goes for the best.
Subscribe to:
Post Comments (Atom)
1 comment:
2 months till the next appointment.
Of course it take 2-3 months for the meds to start to work, but meds are not our only problems.
The one thing I don't like about my rheumatologist is the long wait between appointments, and if something comes up and I want an earlier appointment, I can never get one.
(I have DM too, or the last 2-1/2 years.)
Post a Comment