Monday, January 18, 2010

Getting a little better :-)

Well, just had my latest visit with my rheumatologist and things look a little better. A check a couple of months back revealed that the Imuran was just not helping much with my Dermatomyositis. The CK levels just kept getting higher and higher (with the latest tests showing a level of over 700 IU/L, normal being below 190 IU/L) as the Prednisone dose was tapered down. So, it was clear that something else needed to be done.

At this point, to be honest, I was a bit scared. Well, not scared, maybe just disappointed, or a little depressed. See, I know I'm on a timer here, kind of sitting on a time bomb. Taking Prednisone it's only a matter of time before the bad side effects start to show. From what I've been able to gather, I have a window of about 2 years, before this happens... and I've already been under the drug for almost 1 year. The hope was that Imuran would help, and so I could be taken off of Prednisone. That didn't happen...