Well, after a week or so I can say I am completely settled in California, with loving wife and two beautiful daughters. Last week was all about doctor's visits and lab tests. I had to find a new primary care physician and a new specialist to follow up on my disease. Everything went well and I am very happy with the doctors that will be helping me from now on :-) One interesting thing: the main specialist that followed my case in Kansas was a Neurologist, but now I will be seen by a Rheumatologist :-)
One important thing was getting my monthly lab tests done. My PCP ordered them and, as I feared from the way I have been feeling, the CK levels went significantly up to almost 900... not good at all. My rheumatologist agreed and suggested to increase the dose of Prednisone. So now I am on 20mg of Prednisone daily (instead of every other day). I'll be seeing him again in two weeks, when we'll keep discussing future alternatives...
So, all in all, I'm pretty much settled now. Very happy to be finally reunited with my family. They've been a little put off with my general mood (caused by the medicine), but nothing bad :-) It's funny... the prednisone, among all the side effects, causes an increase in irritability. Which basically means that most of the time, even though I'm not necessarily mad, I might act as if I was, responding aggressively to stimuli. Or, sometimes I just feel like I don't want to talk to anyone, just want to be left alone. When I lived alone, I didn't notice this much (although my closest friends would mention to me all the time that I was all around more aggressive). But now, when I have my family around all the time, I have noticed it myself. So, when I'm conscious that I'm just in a bad mood, I try walk away a little, maybe go for a nap or something, so as not to upset anyone :-)
It's all a process, but I'm just learning to live with this...
Monday, September 14, 2009
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